Four-year-old Tia Foster-Price has a condition called epidermolysis bullosa (EB).
It means her mum Anne Marie has to treat her skin and pop her blisters every day – and it stops her running around with her friends.
Anne Marie says she thinks: “Is she going to die this year? Is she going to live?”
But she hopes Tia might benefit from a pioneering genetic treatment that recently gave another little boy with EB a new skin.